Blogs

  

The Pivot Pillar: Why Policy Is the Missing Link Between Health Literacy Research and Real-World Change

By: Karen Komondor, President, and Greg O'Neill, Board Director, U.S. Health Literacy Association

Anyone in the health literacy field knows the feeling: the research is there. Decades of study confirm that clear communication, plain language, and teach-back improve patient safety, boost adherence, reduce avoidable utilization, advance equity, and build trust. Yet despite this evidence, practice on the ground hasn't caught up. Materials still sit above a sixth-grade reading level. Informed consent is still a signature, not a conversation. The evidence exists. The change doesn't. 

The gap isn't a lack of proof or good intentions among practitioners. It's a missing or weak bridge in the middle: policy. 

Research Discovers. Policy Decides. Practice Delivers. 

  • Research generates the evidence: what's broken, what works, and for whom. 

  • Policy translates that evidence into requirements, standards, incentives, and funding. 

  • Practice is where it all plays out, in the exam room and the discharge process. 

Without policy, research remains a publication and practice remains isolated innovation. Each pillar depends on the others, but policy is the one most often left out of the conversation, and the one most responsible for whether good evidence ever reaches the people it's meant to help. 

Why Policy Is the Pivot Point 

Research alone rarely changes behavior at scale. A study can prove teach-back reduces readmissions, but proof isn't a mandate. Without a mechanism that turns findings into obligation, evidence stays optional, and optional things get deprioritized under pressure. 

Practice alone, without policy behind it, depends on individual will and local culture. A nurse manager who champions plain-language discharge instructions can move their unit, but rarely their health system. Good practice stalls at the edges of institutional support. 

And policy without research risks becoming outdated or disconnected from what's actually happening in the field. What makes good evidence stick? Policy in the form of practice standards, accreditation requirements, reimbursement rules, and mandates turn “this works” into “this is how we do things,” and eventually into how the field does things. 

Examples of Health Literacy Policy Doing This Work 

A few examples show this pattern in action: 

  • The Plain Writing Act of 2010 and related informed consent requirements turned research on readability into rules for federal agencies. 

The sequence is the same each time: a research finding identifies a problem, a policy mechanism gives it teeth, and practice changes because the incentives around it changed. 

Why This Matters Now 

Healthcare is changing faster than ever. Artificial intelligence, digital health technologies, workforce shortages, consumer expectations, and growing health inequities are reshaping how care is delivered. The pace of innovation has far exceeded the pace of implementation. 

Health literacy cannot continue to rely on passionate individuals who happen to champion clear communication within their organizations. Sustainable improvement requires systems that expect, measure, support, and reward health literacy practices. That is the work of policy. 

When the Bridge Is Missing or Weak 

When the bridge is missing, research stays locked in journals instead of making its way into protocols and workflows. Frontline practitioners, who need it most, never encounter it in an actionable form. A lack of policy requirements also has a chilling effect on the amount of research funding made available for analysis of the impact. For health literacy practices to reach systems at scale, more incentives are needed so research can continue to inform policy among the other competing priorities facing systems of care and the direct practitioners carrying it out.  

When the bridge is weak, innovations in practice stay local and anecdotal. A single clinic's success story doesn't spread, because there's no policy vehicle to scale it or hold other organizations accountable. Good ideas end up reinvented unevenly, again and again, instead of being built into the system once and shared everywhere. Without the policy infrastructure behind it, these well-intentioned and effective health literacy interventions do not become part of the business model for care delivery.  

What Strong Health Literacy Policy Looks Like 

Good policy doesn't simply create rules. It removes friction. Strong policy tends to share three qualities: 

  • Grounded in current research, not outdated assumptions about how patients communicate. 

  • Specific and actionable enough for practice settings to implement, not just a statement of values. 

  • Built with accountability and measurement, so practice changes generate new data that feeds back into research. 

That third point matters most. The cycle only works if it's actually a cycle. Policy written once and never revisited falls out of step with the evidence and the field it serves. 

In practice, this means embedding health literacy into accreditation standards, reimbursement models, quality measures, organizational governance, workforce competencies, procurement decisions, and regulatory requirements. When that happens, health literacy is no longer optional. It becomes part of how healthcare operates. 

The Cycle for Progress 

Instead of treating research as the finish line, we propose thinking of it as one stage in a continuous loop: 

Research → Policy → Practice → Learning → Better Research 

Research identifies solutions. Policy scales those solutions. Practice tests and refines them. The results generate new evidence, which informs even better policy. This continuous learning cycle allows health literacy to evolve alongside healthcare itself. It provides health systems, payers, regulators and investors with the confidence to continue the pursuit of better care through better communication. 

Closing the Implementation Gap 

Every community has examples of successful health literacy initiatives that improved outcomes, but never spread beyond one clinic, one hospital, or one project. The missing ingredient is rarely another study. It is usually a policy that embeds those successful practices into routine care. 

Health literacy will become a national norm only when our best evidence is translated into standards that organizations are expected, and supported, to follow. 

A Challenge for Every Reader 

Whether you're a researcher, healthcare leader, policymaker, clinician, educator, or advocate, the challenge is the same: How do we move what we know works into everyday practice? 

Closing this gap is shared work, and each part of the field has a role to play: 

  • Researchers: package findings with policy implications attached, not just academic conclusions. Ask what standard or requirement this evidence should inform. 

  • Policymakers: build feedback loops so policy stays current with research and responsive to what's happening in practice. 

  • Practitioners: advocate for policies that reflect what you're seeing in the field. You're often the first to know when a standard doesn't match reality. 

One place to start: identify a single health literacy practice in your organization that relies on individual effort rather than organizational policy. Then ask, what policy, standard, or incentive would make this the expected way of doing business? That's where lasting change begins. 

The Pivot Pillar  

This is the theme we keep returning to at USHLA, and it's central to what brings the field together at IHA: research without policy stalls, and practice without policy fragments. Policy done well, grounded in evidence and built with feedback loops, is what lets health literacy gains build on each other and spread across an entire system rather than staying trapped in a single clinic or champion. 

When research, policy, and practice work together, health literacy moves beyond isolated success stories and becomes standard practice across healthcare, improving safety, equity, trust, and outcomes for everyone. The pivot pillar is the one we can't afford to leave out. 


About the Authors:

Karen Komondor, President, U.S. Health Literacy Association

Karen Komondor is a nationally recognized health literacy leader and healthcare communication strategist. As the founder and president of Health Literacy 360 LLC, she delivers keynotes, training, and consulting services to enhance healthcare communication and practice. A registered nurse, Karen began her career in trauma critical care before transitioning to staff and patient education, where she discovered her passion for advancing clear communication as a foundation of high-quality care. She served for more than two decades as Director of the Health Literacy Institute at St. Vincent Charity Medical Center in Cleveland, Ohio, leading efforts to embed health literacy practices across the continuum of care. Karen has chaired Healthy Cleveland’s Health Literacy Task Force, co-founded and served as president of Ohio Health Literacy Partners, chaired the National Council to Improve Patient Safety through Health Literacy, co-chairs the AI Health Literacy Committee within the HIMSS Northern Ohio AI Center of Excellence, and serves as president of the United States Health Literacy Association.

Greg O'Neill, Board Director, U.S. Health Literacy Association


As the Chair of the Health Literacy Council of Delaware, Greg leads a statewide initiative to impact the strategic plan for health literacy across all health sectors. He is also the Director of Patient & Family Health Education at ChristianaCare, where he leads the strategic plan for patient education and health literacy initiative systemwide. After moving on from direct patient care as a trauma/surgical ICU nurse, Greg has fully embraced the mission of literacy to improve quality of life and health outcomes. He is also the chair of the board of directors for Literacy Delaware, an adult literacy agency in Wilmington, DE. Greg has been with ChristianaCare for 16 years and received his MSN as a CNS from the University of Delaware.

#IHABlog
#HealthLiteracyPolicy

0 comments
4 views

Permalink