Health Literacy in Clinical Trials: Addressing Racial and Ethnical Diversity When Recruiting and Promoting Participation

Becky Johnson, PhD, MPH
IQVIA
Michelle D’Abundo, PhD, MSH, CHES, ELI-MP, CPC
Seton Hall University
Blizzard Michael, BA, MS, Doctoral Candidate
New Jersey Urology
Sylvia Baedorf Kassis, MPH
The MRCT Center of Brigham and Women & Hospital and Harvard

A disproportionate number of racially and ethnically diverse people have limited health literacy, decreasing their ability to find, use, and act on health information. Evidenced-based barriers to healthcare access and navigation are further complicated by limited knowledge of chronic disease. These factors contribute to the underrepresentation of minority populations in clinical trials—trials that play an essential role in improving health outcomes. Because systemic health literacy prevents patients from participating in research, this demographic is historically underrepresented. From this perspective, we’ll discuss ways to improve patient access to clinical trials.

Objectives:

-Understand and apply health literacy best practices for improving clinical trial awareness and access, as well as patient adherence and self-management during a clinical trial.
-Foster greater understanding of low health literacy’s role as a barrier to clinical trial participation among racially and ethnically diverse populations.
-Present strategies for improving access to clinical trials among diverse populations by addressing systemic health literacy barriers.
-Elucidate the role of health literacy best practices in improving clinical trial recruitment, retention, and patient adherence and self-management during a clinical trial.
IHA Health Literacy Conference
2021
Language, Culture & Diversity
Ethics
Communication
Audience
Health Care Professionals, Researchers and Academics
Setting
Research Settings
Level
Applied