The Health Fluency Project
How two Harvard students are increasing the health literacy and communication skills of non-native English speakers to improve health outcomes
By Beier Nelson Student, Harvard College and Aditya Tummala Student, Harvard College
More than 25 million people in the United States, or 8 percent of the nation’s population, have limited English proficiency (LEP), meaning that they do not speak English as their primary language and have a limited ability to read, write, speak, and understand English. Individuals with such language barriers suffer substantially worse health outcomes than their fluent counterparts, including higher rates of misdiagnosis, lower treatment adherence, and longer hospital admissions, resulting in overall lower confidence and satisfaction in the healthcare system.
For patients and providers to understand and communicate with each other more effectively, we must teach healthcare providers how to be better communicators and empower LEP communities with the skills they need to confidently navigate the healthcare system.
The latter, precisely, is our goal with the Health Fluency Project.
The Stories Behind the Health Fluency Project
We are undergraduates at Harvard College and cofounders of this student-led initiative. Our relationship as cofounders is not limited by academic formalities. We are classmates, roommates, and the closest of friends, and it was through our chats over hurried meals in the dining hall, conversations at the pool table, and deep late-night discussions in our rooms that the core of this project developed.
Personal stories provided inspiration for action. We asked each other: What are you passionate about? How do you want to make an impact on something you would like to change?
Here are our personal perspectives.
Aditya: Growing up in small-town Brookings, S.D., I was familiar with health disparities throughout my community. In such a homogenous population, linguistic and cultural differences of those in the minority tend to be overlooked. Access to healthcare infrastructure is sparse, so the focus of care often lies in efficiency: how to serve the majority rather than adapt treatment options to minority populations.
From pervasive substance abuse among classmates to disparities on the Rosebud and Pine Ridge reservations to my own household’s experiences with miscommunication and frustrations during appointments, I saw the consequences of these barriers firsthand in my own community. Whether due to linguistic or cultural barriers, navigating the healthcare system and effectively communicating with doctors in a rural community were a challenge for my family and countless others like mine. These experiences and stories have shaped me, fueling my dedication to making any difference I can in healthcare access and outcomes — especially for those in LEP communities and communities at the margins of society.
Beier: My mother and I immigrated to the U.S from China when I was 4 years old. I remember my mother’s experiences with healthcare vividly, how she would come home from appointments frustrated, saying things along the lines of, “I don’t feel like my doctor understands me.”
One time, my mother came home with a bleeding ear. She explained that her doctor was being too rough in her exam, but she was uncomfortable alerting the doctor to her discomfort. The continual frustrations built up over time, and my mother eventually told me that she was switching her primary care provider (PCP) to someone who speaks Mandarin—and she has been going to a Mandarin-speaking PCP ever since. These stories inspired me to address health inequities in LEP communities.
Our Project’s Goals
This groundwork enabled us to identify some key bottlenecks in the field of health literacy and communication in our area. Our approach was thus segmented into three major campaigns:
- Enhancing patient-provider communication
- Disseminating key information
- Advocating for policy
Enhancing patient-provider communication
Clear communication between patients and healthcare providers is crucial for successful health outcomes. At the heart of our project are free educational workshops, offered in collaboration with local communities and community organizations, for LEP individuals to strengthen their English to better communicate with providers. We have found that one of the largest factors contributing to health outcomes in LEP communities is what happens at the first patient visit. So, rather than offering a broad health literacy workshop, we focus on that first appointment.Disseminating key information
Advocating for policy
Lastly, we believe policy changes are needed to address systemic language inequities in healthcare in the long term. We have worked with local advocacy groups such as MassSpeaks to raise awareness and promote legislation that seeks to improve LEP health outcomes. In October 2023, we became a formal endorsing organization of Massachusetts Bill H.3084, also known as the Language Access and Inclusion Act, which mandates state agencies to “provide timely, culturally competent oral language services” to all LEP individuals who need them.Receiving Feedback and Learning
Plans for the Future
Tips for Aspiring Initiatives
Thinking of starting your own health literacy initiative? Here are some tips we’ve developed from our own experiences.
- A core pillar of any successful initiative is its community-facing orientation. The needs of the community should drive the initiative’s efforts — not the other way around.
- It is also important to engage in conversations with a variety of stakeholders. For our initiative, we have had countless conversations with libraries, ESOL centers, community centers, refugee and immigrant assistance centers, physicians, researchers, advocacy groups, government officials, and more.
- Lastly, for those seeking ideas to start an initiative, we encourage you to ask yourself this question: What are you passionate about, and how do you want to make a difference?
About the Authors
Beier Nelson is a student at Harvard College working toward a dual major in molecular and cellular biology and government. Beier is cofounder and executive director of the Health Fluency Project.
Aditya Tummala is a student at Harvard College working toward a bachelor’s degree in biomedical engineering and a concurrent master’s degree in bioengineering. Aditya is cofounder and executive director of the Health Fluency Project.
Learn more about the Health Fluency Project at https://www.healthfluencyproject.org/
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